- Pill Count 10
- Adagraf,
- Prednisone (anti rejection),
- Vitamin D,
- Sodium Bicarb (acidosis),
- B12,
- Septra (antibiotic),
- Bisoprolol,
- Amlodopine, (Blood Pressure)
- Coversyl (Protein in Urine),
- Warfarin (blood thinner),
- Old Kidneys: Poly-cystic Kidney diseased
- Pain / awareness of old kidneys
- Possible rupture, sepsis, death, possible cysts in brain, liver
- Multiple cyst size over 1 inch; football size kidney?
- The “Exceptional” Kidney Post Transplant
- GFI <24, dialysis at 15, death at 10
- Protein in Urine
- Metabolic Acidosis
- Epstien Barr Virus
- Virus from transplanted kidney
- EBV active viremia, checked montly
- Fatigue, increase cancer risk
- Advice given by doctors at decision time 1/100 chance / treat-ability “no problem” was either a lie or ignorance.
- Pulmonary Embolism
- Deep Vein Thrombosis, within 24 hours of third covid shot
- From 2 studies to 4 pages in 6 months link Covid vaccine to PE/DVT
- Eyesight
- Cataracts both eyes, minor surgery but worsened if Macular pcukering not treated.
- Macular puckering left eye, Vitrectomy surgery with epiretinal membrane peeling, major eye surgery.
- Fuchs’ Dystrophy, Cornea Transplant needed.
- Psychological
- Grateful for help to date.
- Dubiety in nephrology department process and procedures
- Anger at my own lack of understanding of what an exceptional kidney was
- Anger at nephrology and the Potemkin village they create around EBV and thier abilities to manage it.
- Roads Not taken
- Statin (cholesterol): In 100 treatments they eliminate 5 heart attacks and strokes and create 1 case of diabetes. I do not want diabetes.
- CPAP machines: (Sleep Apnea): Working on weight instead
Last Update March 2023